I know this is a breach of folder etiquette, but I think it’s warranted.
The 17 year old daughter of a long-time, very good friend, suffered a cardiac arrest, at her school, on Wednesday. The high school EMTs resuscitated her, and were able to get her to Duke Hospital.
She’s still there, in a medically induced coma, There’s a lot of fluid in her lungs, and she’s on a resuscitator.
She’s a good kid. Blood test showed no drugs. It’s too early to tell if there is any brain damage, or if she will even pull through.
The Breaktime Bunch has always been generous in sharing, so I’m asking for help…Her name is Natalie, and she and her family could use any spare positive thoughts. Thanks.
We’ll have a kid Or maybe we’ll rent one He’s got to be straight We don’t want a bent one He’ll drink his baby brew From a big brass cup Someday he may be president If things loosen up
Replies
DONE!
Life is not a journey to the grave with the intention of arriving safely in a pretty and well preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming
WOW!!! What a Ride!
Forget the primal scream, just ROAR!!!
Hope she and her family pull through and can look back in 30 years and say 'remember when...'
Good thoughts and best wishes to them all.
Anything else we can do?
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The're There
I'm on it - keep us posted.
copper p0rn
You got them, any objection to prayers....
Too late.
Take care, support Natalie's family any way you can.
Jim
Holly,
She and her family have mine. You too.
darcy
Please tell them that she and they are in my prayers, and I hope they can feel God's touch and His strength as he holds them up in His arms during this trial.
"Ask not what the world needs. Ask what makes you come alive... then go do it. Because what the world needs is people who have come alive."
Howard Thurman
http://rjw-progressive.blogspot.com/
My most sincere wishes for the best.
I refuse to accept that there are limitations to what we can accomplish. Pete Draganic
Take life as a test and shoot for a better score each day. Matt Garcia
I B praying
Welcome to the
Taunton University of Knowledge FHB Campus at Breaktime.
where ...
Excellence is its own reward!
Prayers are gratefully accepted.Latest (edited) report:<<Hello all,I just saw L in the lobby of the ICU about an hour ago. Natalie is improving - but certainly not out of the woods. They have switched ventilators and are slowly lowering the oxygen level and her level is staying in the 100% - which is a great improvement. They are also raising her body temp. back to normal - and all indicators are positive - or as the medical world states "optimistic". The fluid in her lung is also "thin" as opposed to "thick " - which is a good sign - as thick would be more of an indicator of disease. The fluid could be cause from the trauma of CPR and defibrillator. They still aren't sure what has caused this "incident" - as they refer to. Test will be done once she is more stable. She is still sedated. Natalie's friends are coming today - and are going to meet at the small chapel on the 6th floor since they can't see her. I think that is very touching and says lots about Natalie.Keep sending those good thoughts to Natalie, family and friends.>>Thanks again, BTers... I get a little too teary to write much.http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Holly,
As a father of grown children you know the feelings you have for all those too innocent to be in this kind of trouble. All our energy for recovery go out to Natalie. Best to her friends and family.A Great Place for Information, Comraderie, and a Sucker Punch.
Remodeling Contractor just outside the Glass City.
http://www.quittintime.com/
Found this, will be praying for her!!
Thanks for the update, probably good Natalie is still sedated.
Sounds like things are getting a little better for her.
Got a 17 yo daughter myself, I can't imagine......
Glad you sanctioned prayer.
Help the family anyway you can, try and talk with Natalie's friends a little when they come - then leave them alone, they need time and space too. Kids this age will amaze you sometimes - sounds like a good bunch.
JimNever underestimate the value of a sharp pencil or good light.
count me inNo Tag
I'm with the rest -- praying and thinking good thoughts.
..
Envisioning Natalie immersed in and empowered by pure white light and divine love.
Thanks for the opportunity to receive the same.
If it's any help, I was in an induced coma for a week and came out ok.
Hope she has a good recovery.
Mike
Small wheel turn by the fire and rod, big wheel turn by the grace of god.
Only 17 years old, that's harsh.
Here's some positive vibes from Canada.
Edited 10/2/2009 5:29 pm ET by sisyphus
Natalie is in my thoughts and prayers.
Have been thinking about her on and off all day. My hopes and prayers are with her family.
Thoughts and Prayers for her full recovery...buic
I hope Natalie and her family are fine.
Will Rogers
All thoughts from the LeCouffe clan.
I submitted a prayer request to the prayer line at our church.
I want to thank you all for your energies, in all forms. I also want to thank the mods for allowing this to stay on the main board, I know you didn't have to.Here's a report from last evening (edited):<<On Wed. Oct 1st, a little after 3pmNatalie entered the bathroom alone at school, a male student heard some unusual breathing/gasping sounds from outside in the hallway. He asked a female student to go in and check it out; they immediately found two teachers to come and help and the EMT’s were called. Fortunately, not only had the teachers’ been recently trained in CPR, but the school was also equipped with a defibrillator ( those jolting electrode devices that reactivate the heart). One teacher proceeded with t CPR until the other returned with the defib and engages that device.The first jolt, nothing…second jolt produces an erratic slightly accelerated heartbeat in Natalie. (NOTE: to all parents of school age children: Mom and Dad both felt that the teachers CPR training and the presence of the defibrillator were the most critical factors in saving Natalies life. If you are parents of schoolkids, make inquiries at your school about gettingCPR training and getting these defib devices..)The EMT’s arrived and diagnosed Natalie as having suffered a ‘heart seizure’ which, unlike a heart attack, is characterized by a sudden heart stoppage as opposed to a ‘ heart attack’ which usually has preliminary symptoms like numbness,cramping, nausea….Anyway, the EMT’s then gave Natalie some powerful medications to stabilize her heartbeat and to sedate her enroute to Duke Med. Center.Once at Duke, the medical staff took complete control of all of Natalie’s bodily functions. They temporarily paralyzed/disengaged her muscles and nerves, they sedated Natalie so that she remained unconscious, then they slowly cooled down her body temperature to stabilize and calm the traumatized organs. This ‘cooling’ as they call it, extends for a 24 hr. period. Then, once ‘all is stable’ they slowly increase the body temperature back to normal 98.6 over the next 24hrs. and monitor each organ closely to see if each can function again normally and unassisted. So far, all of Natalie’s organs are functioning on their own and without mechanical assistance, except her heart and lungs.Her heart is beating with the assistance of a drug called epinephrine which is fed intravenously. As her heart grows stronger, the meds will be reduced proportionately until her hearts beats unassisted. Her lungs still have some residual fluid in them so they‘ve put her on an oscillating ventilator. A normal ventilator just supplies oxygen in steady constant flow, but this oscillating ventilator sends vigorous short bursts of oxygen that pulsate her entire body. Unfortunately, it also requires that Natalie remain unconscious/sedated and that her muscles/nerves remain paralyzed pharmaceutically.As I write, Natalie is beginning to show signs of breathing on her own, which shows both progress and promise. Soon, hopefully, they will put her on a normal ventilator and re- engage her nuero- muscular functioning and withdraw the sedation and begin to examine the status of her brain functioning …. They will not be able to do any brain tests/scans/procedures nor determine/diagnos/treat anything UNTIL ALL the other body organs/systems are stable and functioning pretty much on their own.So keep the positive energy, the prayers, the well wishes and the massive waves of love coming in as we approach this next stage of recovery. Each day that Natalie is with us is the very best indication that she will stay with us. As Dad and the medical staff continue to say to us:“this will be a long process.”… and it’s just to early to speculate on how days, weeks, months that might be; but it is safe to say that we will all be right there with them however long it takes. >>http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
this is sounding better.
thanks for the update
Thank you for the impressive report. Sounds like grace has been with Natalie from the very beginning of this event. That in itself is a strong sign that she's going to be with us for many years to come.
I've already asked that she makes it out fine. I will again later as well.
Though we spat like dogs & cats in this place, the Breaktime crowd is like no other when it comes to this.
Holly...I have two daughters...Jolie is 19...not much older'n yer friends daughter so I can imagine what they must be going through. I can't think of too many things more earth shattering. Puts so much into perspective.I have my deepest good thoughts on full blast for her!!View Image
The Woodshed Tavern Backroom
The Topics Too Hot For Taunton's Breaktime Forum Tavern
New to Breaktime; not new to praying. She's in mine. I have a sixteen-year-old daughter; I can't imagine what her family must be going through. Praying for them, too.
Hi Snort,
Got her on my prayer list and have begun spending time praying for her and her family.
Do you have an address where cards can be sent?
View Image
Here's the latest (edited):<<More from Dadby admin on October 3, 2009Just a couple notes in way of updating all. Natalie is doing so well on the ocsillating ventilator (its a beast that sounds remarkably like a single stroke vintage John Deere ) that she is weaning herself and fighting to breathe on her own ! They may switch to traditional ventilator today.I warn myself to not get too excited. It may take longer, but this is no baby step. This is huge.Two other musings … I told Mom the chances of a healthy vibrant 17 yr old having a cardiac arrest must be similar to winning the Lottery. I said I would rather win the Lottery. This morning I woke and realized we have won the Lottery! The Lottery of Love. Thanks for sending so much our way. It energizes us.It surrounds Natalie. It encompasses all. Thank you. Bless us all.>>Thanks again, and please don't stop, I sincerely believe you all are helping.http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Maybe a dumb question ... if a person has fluid in thier lungs, why can't it be "vacuumed" out?"Put your creed in your deed." Emerson
"When asked if you can do something, tell'em "Why certainly I can", then get busy and find a way to do it." T. Roosevelt
This morning I woke and realized we have won the Lottery! The Lottery of Love. Thanks for sending so much our way. It energizes us.<<Reminds me of what Ram Dass said about having his stroke. After all the trials and tribulations it put him through...he ended up learning more about himself then he ever would have imagined and now instead of telling people he had a stroke...he tells people, "he was stroked".
I like that : )
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The Topics Too Hot For Taunton's Breaktime Forum Tavern
still sending mojo and juju...plenty more to come.Spheramid Enterprises Architectural Woodworks
Repairs, Remodeling, Restorations
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Thanks, all you folks, the news keeps getting better (still editing):<<<Friends and neighbors ;
1:00 PM, 10/03/09
Natalie has made real progress today. She is off the "puffer ventilator" and on a regular breathing machine as of mid day. Her color is much improved. She has been quite responsive to light and other simple stimulus. The paralytic drugs have been greatly reduced, but the sedatives are still in control. Dad and Mom are living at the hospital, needless to say, and are greatly encouraged. They both have had some rest, and are doing OK. Every little step in this incredible process has gone in the right direction, which gives great hope for a recovery.
Keep the good energy coming in, and let's hope to see them all at home in the near future.>>Keep that good stuff heading in their direction.http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Wonderful report. Thanks for keeping us up to speed.
Good news is still coming in (edited):by admin on October 3, 2009<<<Today is the next day. Natalie has made it through another day of intensive care.Every day she gets through raises her odds of survival. Time stands still when you are anxious for it to pass. Damn clock won’t move when you watch. But it does. And we reach day 3. Day 3 which means more than 3 times her chances than when we started this journey.That is big. Big is good. Better is reaching tomorrow.
But I dare not think ahead. One day at a time. Here and now.
Now is day 3 and we have downsized ventilators. Natalie has beat a slight fever. Natalie is breathing with the machine instead of the machine breathing for her. My Love for her and respect for her strength is officially boundless.Boundless too are the Love and energies coming her way from friends and family.
Nothing unites us like a crisis. Nothing builds strength and character like a dire event as this. The strength of love sent from others buoys Natalie.
The Angels are working overtime.
Angels here on earth work in hospitals. Natalie is getting the best care possible.She is by no means out of the woods.Hard work lays ahead.
Mom and I have raised one tough girl.Thanks is too small a word to express our gratitude to All for Love, prayers and support.
Bless you. Bless your families. Bless your children. Hold them close.Peace >>>http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Powerful words and emotions from a great loving parent. It's a blessing to me to be a small part of this circle of friends.
buck...... just happened accross this..... Helen and I will keep her in our thoughts
bless and keep you and yours Mike Hussein Smith Rhode Island : Design / Build / Repair / Restore
Bump - you were about to slide off the active display list.
Just so you know, "Natalie in Duke Hospital" was mentioned in "Prayers of the People" at our church today. 275 in attendance. Her team is growing.
Pays to be an Elder sometimes.....
Sounds like each day is a little better for her.
JimNever underestimate the value of a sharp pencil or good light.
<Her team is growing.>It's funny you would say that... her supporters are calling themselves Team Natalie. It's great to have a team everyone can root for.The news keeps getting better... well except for the Duke tee shirt part. LOL<<<<Friends and neighbors ;I visited Natalie, Dad, and Mom today at about 6:00 PM. Natalie looked good. Her “numbers” were fine, and there had been no negative events in the past 24 hrs. Both paralytic and sedation have been substantially reduced. Natalie has shown some motion and opened her eyes a couple of times. She has not regained consciousness yet, and is not breathing 100% on her own. As I understand it, she is taking partial involuntary breaths. I really don’t understand the relationship between the drugs and ventilator, so I can’t say what it all means. In a general sense, as I understand it, she has moved to a point where she can try and wake up, at least in part, if she is able. Dad and Mom have been told that she might respond in a couple of hours, or a couple of days.Needless to say, the stress on these two parents is pretty high. While talking to Dad out in hall, he said that he had promised God he would wear a Duke T shirt everyday for the rest of his life if Natalie would just wake up and be OK.I am thinking we should all pick up a few T shirts (that would be X large) and have them on hand.The cardiologist had an explanation of what caused this trauma. I can’t explain it here, but I am sure we all get it in detail soon.This is a difficult part of a difficult process. So far everything has gone well and that there is no reason to expect anything less than a positive outcome. We will have to wait just a little longer to see this recovery, however.Send Mom and Dad that good energy. They need it today.Pass this on as you see fit>>>>>http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Just saw the thread, Sending love, peace, and healing. Asked some angels, and spirit guides to help her and her parents, sent Reiki and heartfelt prayers. Sent prayer request to Silent Unity.Will continue to know in my heart she is recovering and will be fine.
Just a thought Holly...
What if everyone who can go to their local university and get a t-shirt with that university's name on it. Send it to you and you hand deliver it to them.
Show them the scope of support they are getting.
Bruce, that's a pretty cool idea... did Audry think of it? LOLI'm game.http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Hi,
Mrs. Jet here,
Jet called earlier to bring my attention to this thread (He did say "Read only if you need a good cry" and he was right.
I must give him total credit for the t-shirt idea, and I'm very impressed, but I always knew he has a good heart (spiritually if not always physically ;-)
I would like to thank you for your "heads up" about the training and de-fib machine. We are full believers in both, as former lifeguards (In Jr. Jets case he's trained and trying to get a job). We know there is some training that you never forget, but hope you never have to use.
I always felt the boys where safe at school as the police/fire/city hall/pool and arena are all across the street, and I know they all have the training and the machines needed in an emergency but it would not hurt for the school to have one too (I do know there are trained teachers on staff).
BIG HUG, our best and most positive thoughts are with you et al.
Luv
Mrs. Jet
Here's the two latest reports:<<<by admin on October 5, 2009After picking Luther up from the airport we ran over to the hospital to drop off some goodies for Dad and Mom. The one goodie was a Duke T-shirt for Dad. How appropriate the timing was as when he walked in to the waiting room he stood their shaking his head with tears of joy rolling down his cheeks and simply said” She is pissed off, wanted to get up and Pee and get out of there”.Wow….I told Dad to put that darn shirt on right away because his prayers are being answered quicker than anyone would have ever thought. Dad said “you can bet I’m a christian again….” Luther and I left with such feelings of encouragement. Keep the prayers coming and all the good wishes for the entire family….>>><<<Just stepping in with a short post. I spoke with Dad and Natalie is off the support systems, awake and talking. Talking quite clearly and specifically in fact. Her first words, and I paraphrase here, were something along the lines of “lets get out of here “(edited for family friendly text of course). I’ll let her do the edit in due time but for now all our prayers have been answered and our tears of joy are flooding the keyboards as we share the good news. More to follow just as soon as possible………Team Natalie stands tall…..very tall>>>Again, I am so thankful to everyone here for their energy and prayers... and to the BT mods for allowing this to stay out in view... you're all right, I don't care what anybody says<G>http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
So glad to hear it! Some positive energy is heading her way from CT!
Wow! Now that's a good sign...wakes up pissed off and wants to get the ____ outta there. Hooray for the bearers of light and love!
This is an email I guess I got before Natalie fully woke up...as you can probably tell, this is pretty tough for Tarheels<G> <<I assured Dad he doesn't have to wear a crummy Duke shirt - as I noticed Mom looking quite fine in hers. Oh well - They are great at heart, but Dad doesn't have to convert - although he is ready to do whatever. He is jumping out of his skin - needless to say. Natalie did respond to him today with two nods - one no and one yes. No to 5 more minutes sleep and yes to wanting to wake up. This is huge and very encouraging. Mom told me they have diagnosed Natalie with Long QT Syndrome. Here is a good site from Mayo clinic:
http://www.mayoclinic.org/long-qt-syndrome/diagnosis.htmlIt is basically a electrical problem so Natalie will most likely have some sort of defib implanted. Sister was tested today - they will know about that soon.Just wanted to let folks know what I know - it is looking good.They both appreciate all the good feelings, prayers and thoughts - so keep them coming.>>>http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Thank God Natalie is coming around looking to be fine, Thank God,
When I first read this one a hot flash went threw my body & a sickning chill.
Our oldest Daughter Ame, had this happen to her when she was performing her collage recital as a music major. Shortly into her performance her heart went into V-fib & she hit the floor making those horrible breathing sounds that will haunt use forever. Event staff with CPR training froze up, The diffilator was in another building & no one got it, Ame was turning the most horrible shade of blue, she was dyeing in our arms. We could hear the Sirens & the EMTs arrived shocking her several times they got a rhythm back, then snatch her up & ran off the stage.
I just remember looking around, not hearing anything, seeing all the people hurrying around in slow motion and all I could look at was the massive amounts of medical packaging lying on the stage floor! My God ,what just happened?
Now my wife of some 25 years at that time, never panics or gets upset, but this time, things were bad, she was shaken to the core. Its funny what one thinks in a time like that, Ame is most likely not going to make it & all I could think was, "How are we going to explain this, what are we going to tell people?"
Ame spent the next eight days in & out of conciseness on a vent. The brain damage was extensive. Ame spent 23 days in the ICU & a total of 42 days in the hospital.
She had to learn everything over, walking, talking, eating, bathroom, dressing, reading, writing, math, everything....
It will four years already, December 10th. not hard to forget, December 11th is Ames Birthday, She will be 27 this year Ame lives at home with us now & is fully disabled. We have many good days & some bad days, today was a bad day.
I have a picture of Ame that I'll get out & share with you that makes me cry everytime, You'll see why.
So, Thank God Natalie is coming around & looking to be fine, Thank God!!!
And Thanks for the ear.
Paul
No one should regard themselve as "God's gift to man." But rather a mere man whos gifts are from God.
Mrs. Jet hereEmbrace the good days, and on the bad days just embrace your daughter.
Thank You, really, Thanks, its nice to get words of encoragement No one should regard themselve as "God's gift to man." But rather a mere man whos gifts are from God.
hey, Paul.... here's a pair of hugs for AmeMike Hussein Smith Rhode Island : Design / Build / Repair / Restore
Thanks Mike
Thank you very much
Paul No one should regard themselve as "God's gift to man." But rather a mere man whos gifts are from God.
Paul, I certainly have Amy and your family in my thoughts.http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Sorry for the update delay, but here's a couple of the latest:<<<by admin on October 6, 2009WHAT A DAYI refuse to leave the hospital because it is so cool seeing Natalie re-orient. Also, I do not want this day to end ! If you think child birth is amazing, it can not hold a candle to re- birth ! Against large odds, Natalie is doing everything to whittle the myriad of tubes and connectors down. They just dialed her oxygen to half and she is maintaining 99%. This keeps my old headshaking , but in a good way. As soon as she is weaned, she can trash that tube.She obviously is getting help. First from the outstanding facilities here at Duke. Only surpassed by a physician and nursing staff that is beyond superb. I will wear a Duke shirt proudly as I know it is in honor of a medical facility that helped save my daughter’s life. Thank you ( way too short a term)Natalie is incredulous that she was out for 5 days. She is absolutely amazing. I am sleeping close by in case she wakes to help ease her re-entry. This is unbelievable ! She first insisted on getting out of bed to pee. She is amazing…did I say that? She is asking questions and making judgments . Short term is off, but hey.One thing to clear up. Her voice is scratchy from the vent tube. When she first saw her younger sister, we thought she said ” Get her away or I’ll get a stick “ Now this seemed like her traditional big sister feisty response. UPON FURTHER REVIEW… Kaytee was wearing a mask for H1N1 reasons. We now realize she said ” get her away or I’ll make her sick “. Just a slight difference ! Did I say how proud?I must say with all this excitement it must be tempered. One, because of how far we still need to go. But two, because we are in a ward of miracles and the utmost tragedies.There are kids here fighting huge battles while only being months old. ” Fair” is not a word used often here.She works hard and now is sleeping hard. I can not imagine ever being more proud of my daughter. But she has already busted most of my ” imagines “.Everyone’s response has been overwhelming. Kudos to Steve Fisher for setting this site up. To Ricky Lee Harrell and Bob Hartford for posts. And to all for visiting and caring and forwarding your love, energies, prayers and blessings.PEACEDad and his THREE girlz 6 am ,Day 6 !>>>http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
<<<<<Just a quick note….Natalie is doing great – she is bored and wants to get out of here.Saw Mom briefly – Dad is home sleeping – think they are trying to catch up on some much needed rest. Mom said they may move Natalie out of the PICU (peds. Intensive Care unit) – out another area – which is great. In the next few days they will be implanting a defibrillator of sorts that will keep this from happening again. They also will hear in a few days, if Sister is in danger – blood work is off to Mayo clinic.Keep the prayers and good thoughts coming….Go Natalie go…..<<<<http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Enlivens my spirit and makes me smile, hearing that Natalie is regaining her usual feistiness.
Thanks for the reports.
Here's today's report from Natalie's mom:<<<<<Mom updates us Wednesday lunchby admin on October 7, 2009What a ride — people have said roller coaster — and that about sums it up.Dad has summed up the events of yesterday and up until about 10 pm. Here’s what transpired from then through the night. Sleep and some minor adjustments to her pic (sp) line. It’s an iv thing that’s inserted in the bend of her left arm and follow up x-rays. Beyond that, she slept a lot. And as I was on the pull out chair, each time she roused we could talk to each other. And when she needed me, I was two steps away.That was a good feeling, for both of us.I’ve had so many things rush through my mind these last few days. One is that scene from Terms of Endearment when Shirley McClaine rushes around the nurses’ station shouting “Get my daughter the medicine!” I’ve haven’t been yelling and neither has HB. As he always says, you catch more bees with honey! Anyway, we’re not yelling nor have we had to. But we are vigilant and thank goodness there are two of us, as we tend to be vigilant about different things. Together, we tend to cover most of it. That’s where you all have played a vital role, either by sharing the navigation of a similar experience or just reminding us to take each day as it comes. We are doing a pretty good job of that, but the reminders are essential. Thank you!The other thing that hit me like a ton of bricks was moving from ICU to a regular ward has been like moving from having an infant to managing a toddler. One day they stay where you put them, the next you have to watch them like a hawk. We’ve been in hawk mode the last 24 -36 (?) hours. And while it’s certainly what we wanted, this phase has it’s own scares and new kinds of exhaustion. But just as we made it through her first round as a toddler, we’ll make it through this round, all together, a little sleep-deprived, certainly challenged and aggravated like we can’t believe and totally in awe of our beautiful, brilliant, baby girl. Our sweet pea!Dad mentioned this and I will too. We anticipated being able to have more visitors for Natalie when we moved out of the ICU. For a variety of reasons that won’t be possible. The first is she needs to get as much rest as possible. Between the different teams of medical professionals who are coming by — surgeons, cardiologists, geneticists, neuropsychologists, physical therapists, healing touch practioners (Google Healing Touch International for more info on what and how wonderful that is), nurses, etc — it already feels like we’re on a circulating microwave plate with our brains being overcooked.Second, It is louder and more chaotic on this floor just because of the increased number of need but not really that many more staff. People move faster out here because they have to. And they are still doing an excellent jobThe final reason folks can’t wander back is the risk of infection from H1N1 and any other number of things that anyone could bring in. While there are about 10 patients and their immediate family members wandering in and out of ICU, there are easily 30-40 patients (and their families) on the regular ward. That’s a greater likelihood of any number of things that could get to any of those children. And as the mom of one, I’m requesting that you not try to come back to see us, but instead to allow us to come to you. We can sit there with you just beyond the floor or go to the beautiful courtyard and catch up. Depending on how Nat is doing, we can even wander off-site and grab a quick bite.Very soon, I hope that she’ll be up to taking phone calls. I’ve been asking because I know some of her friends are anxious to talk with her. So far her response is: not yet. As always, our child knows herself and her limits. I also hope to set up a webcam if she’s game for that. That may or may not happen at the hospital and may need to wait until we get home. I’ll keep you posted on that.We do feel your love and will need to be reminded of that for a bit longer. It is sustaining us.>>>>http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Still reading along and praying along too.It's an emotional thread and situation for me. It brings back all we went thru several years ago when my daughter went into a coma in South Carolina after a stressfull week and a fall that bumped her head.
Welcome to the Taunton University of Knowledge FHB Campus at Breaktime. where ... Excellence is its own reward!
We do feel your love and will need to be reminded of that for a bit longer. It is sustaining us.
Might I add that your love and strength come through this message beautifully and profoundly. It's inspiring to me.
And I'm grateful for the opportunity to be a member of your extended circle of friends.
Just to clear things up, I'm not writing much of this... everything inside the quotes are other peoples words... mom, dad, grandmother, eloquent friends... but don't let that diminish your support, because it surely is working.Here's this mornings news, very good:<<<Very Positive news flash…………by admin on October 7, 2009I spoke w/ Dad a few minutes ago and Natalie had an MRI at 1 this afternoon. The docs that performed that scan wanted to stop by and deliver the news to the Houghs personally. That from their initial assessment there was NO DISCERNABLE DAMAGE TO THE BRAIN from lack of oxygen. I guess the best I can do is the caps because boy that was the vibe in his voice as we spoke. The doctors really wanted to meet the first responders because they were very directly responsible for saving the life of this beautiful child. This perhaps is the finest, most definitive news to cross this site since its inception and HB would have shared it himself but for tending to other functions that also seems to working quite well, if not on schedule, if you know what I mean.Our community and the love of god has stood tall in the face of this adversity and I’m sure will continue to do so.Stay tuned for word from the gang as is possible. >>>>><<<<<
From Natalie’s grandmotherby admin on October 7, 2009It’s the grandmother’s turn to give you my update…I’m mom’s mom, . Natalie’s grandpa, and I have been doing exactly what Dad and mom have told us to do. Anything to provide the support they, Natalie, and her sister needed.From a grandparent’s perspective we have been on the roller coaster with everyone else and as Libbie wrote earlier it has been quite a ride. Being with our daughter and son-in-law throughout this ordeal was anguish. The first time I walked into Natalie’s room all I could do was stand there and look at her. I wanted to embrace her but that wasn’t possible. The room felt cold, the sheets were too white, mom was numb, dad was on his way. I “should’ve” known what to do. I’ve had all the training. I couldn’t do a damn thing. All I could even think of was “God, what the hell is going on with my Natalie!. Help us.”All of you who’ve kept up with the blog (for which I am deeply grateful) have read the excellent narratives from mom and dad, Steve, and Ricky Lee, Bob (edited to add: theses are most of the writers)…and more, know the rest of the story.Now our Natalie’s bright eyes are back. You all know about those eyes!!! She’s been very busy answering doctor’s questions for two days, having tests and trying to sleep in between.I want you all to know that as she began to refocus today, this afternoon specifically, I watched her read the cards and well wishes from you all. I watched her face and noticed that familiar scruntching of her nose and brow. I noticed she had tears in her eyes as she started reading your endearing well wishes and she said: ”I’m so happy!” Natalie is beginning to absorb the information about what happened, her journey, and how the collective community became one in intentional prayer and love for her.She has received Healing Touch every day either from Karen Baumer, RN Jon Seskovitch, RN or me. I am deeply grateful that the healing touch community has sent intentional healing via long distance for Natalie and believe with all my heart that that and all your prayers, thoughts, caring, cheers, have helped pull her through this traumatic event.Thank you all for your support in the numerous ways you’ve been able to give it. I know you will keep the family in your prayers as we encourage and support Natalie back to the fullness of health.Grace and Peace,Grandmaps: I am very thankful to the student who heard Natalie in distress in the restroom last Wednesday. He noticed something, and he went for help. If it hadn’t been for him noticing, alerting the staff, and the swift responses from the teachers close by that evolved, Natalie would not be here today. Thank God that the Orange County school system is light years ahead of other schools by having the AED’s and by giving emergency training to the teachers. Natalie benefitted from it. We never ever thought our family, our granddaughter, would’ve been the one who needed to be brought back to life.Thanks be to God.....>>>>>>http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Just to clear things up, I'm not writing much of this... everything inside the quotes are other peoples words...
I understood that but in order for the spirit of my message to have a real possibility of reaching the intended person(s), without that person reading my words, I must write directly to the person who I can palpably feel through the messages you provide.
Thanks for keeping the good news flowing here. It's truly inspiring to read such heartfelt messages from Natalie's family members.
Edited 10/8/2009 12:04 pm by Hudson Valley Carpenter
Lunch time report:<<<Some thoughts from Dadby admin on October 8, 2009I turned my cell phone off last night for the first time in a week. What a week ! That phone first brought me news Sept. 30 that Natalie had fainted in the bathroom at school. I thought she had just skipped lunch and it caught up to her. I thought wrong. Why is our first response to minimize ? I think it is born out of hope that nothing terrible has happened.The first time Natalie drove out our drive alone my knees buckled. I was not with her if she had a problem. I could not warn her of danger ahead. I as a parent, was helpless. Mom, being much more rational (a common pattern), said ”we just have to trust her “. I fear many things, but the phone call saying “your child has been in an accident” ranks very close, if not the top. So I guess this says ” worry all you want but it will gain you little “.I am worried now for Natalie’s re-entry into a world she left for almost a week. My first priority today is to seek out the social worker on our team at Duke. Natalie is a walking and breathing Miracle. How does she handle that? She was looking at cards and said ” how do I thank them all ? ” How do we as a family do that ? This support is off the charts. Natalie’s recovery is unbelievable .Now I too can not fathom how to thank everyone involved. Starting with the young man who did not choose to ignore the strange sounds from the girls bathroom.One of our lead doctors at the Pediatric Intensive Care Unit ( PICU ) wants to come and personally thank the first responders. He said without their immediate response Natalie would never have survived, Without their quick action, his job would have been hopeless. Instead, Natalie’s case is the type that bolsters their decision to do what they do. Too many times they see tragedy. This time is different.This one is for them.I ramble . I tired. I need to speak to the support everyone has sent our way. I will try to address that during my next therapy session , which is what this is.Thanks to All.PeaceDad and family>>>>>http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Everyone would be fortunate to have parents like Natalie's.
Thanks for keeping the updates coming.
Here's a picture of the young lady you've all helped back from the brink. It was taken this summer in Paris, which is one of the things she can't remember, yet.
View Image http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Wow! A real beauty with fire in her eyes. I can see why the word feisty fits her.
Wonderful to connect with Natalie in this way. Thanks.
I've been holding Natalie in the light since you started this thread. I haven't posted anything because I start crying every time I try...our little one is fast approaching her first birthday after coming into the world 5 weeks early and spending the first 2 weeks in NICU.Natalie is clearly a wonderful young woman surrounded by a wonderful family. I'm so happy to hear she is doing better!
I missed this last night, things are still improving... thanks folks.<<<Hello all,Just a quick note - I ran a card (and some lip goo - we girls love our potions) - over to Natalie. Waited for Dr. herd to move on - and bopped in for a sec -Natalie was sitting in chair - looking great - esp all things considered - talking to Grandma and Mom. A great sight to see.Libby said no needs she can think of - to send all her appreciaton to all.As I say - in and out like a flash - but wanted folks to know - progress continues. All news seems to be positive. There will be ups and downs - but damn - it is incredible.Love you all,Go Natalie go.....>>>>>http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Wonderful to hear that she's improving so rapidly. Please keep the messages coming. They are so full of love and hope that it's infectious. <G>
I've got two t-shirts, one from Robert's college Dawson and I hope one from Montreal's McGill university.
I urge all here to do this. We will send them to Holly to be delivered to "Dad"
Poor man can't go ALL his life in a Duke shirt!Go to your local school and get a T-shirt with the institution's name on it. this may show just how far the good will has come from.E-mail Holly from this board and I hope he will send you a mailing address.
Thank You,
Natalie has received a lot of prayers from this end,
Continue to improve, Natalie!! No one should regard themselve as "God's gift to man." But rather a mere man whos gifts are from God.
Mrs. Jet here,
Didn't want to go into it on my last post but this has brought me back to when I was 20 and my family friend (9 months my junior and part cousin) had a brain aneurysm. Came home with a head ache, past out on the couch, Mum and Dad didn't even wait for the ambulance, put her in the car and drove (Dr. said if they had waited.......) You said it first 24.....if she makes the night......if she makes the next day.
They had to take out a piece of her scull to relieve the pressure (they did put it back) Her parents knew there was no brain damage and all would be ok when they walked into her room and she was giving the nurse attitude because the tea tasted like s#$t.
Two years ago she and her husband did a beautiful job of putting together a great party for her parents 50th wedding anniversary.
The box of kleenex is now part of the computer table, happy to say tears of joy.
Take care, and get some rest, you've got a fighter on your hands, Natalie and her family will need your support, and you've got ours :-)
I've been following along, hopeful - glad you can relate the good news - regards to Natalie and her family - what pain, what joy - D"there's enough for everyone"
Now don't you think for even one minute, that positive results are gonna stop us.We still got you, and her, and all of hers and yours, in our thoughts and prayers.Continuing with the good thought prayers, and being thankful that we can start some thanking prayers.........
>>“lets get out of here “<<
YES, that's the spirit! Way to go Natalie!
We are still pulling for her.
Thanks for family edited version, might not be able to report the unedited version back at church......sorta' 'pends on her choice of expletives.....
JimNever underestimate the value of a sharp pencil or good light.
our prayer and thoughts are with you.
the older i get ,
the more people tick me off
We are praying that Natalie pulls thru with no ill effects.
Mike & Cheryl
Etiquette is out the window! we seem to come together when tragedy strikes. when it does, we are family. I'll say a prayer.
Just saw this ... sending prayers and MOJO.
Best wishes for a full recovery.
Jeff
We're still here.
Thinking, hoping, praying.
I've had some requests to offer up tee shirts. Just email me, I'll send my address, and pass the shirts along. I think it's a great gesture.Here's the latest from mom:<<<<<Saturday lunchtime update from Momby admin on October 10, 2009We both spent the night at home. My mom took the overnight shift and my dad has already headed over. Nice to be here in some silence. Dad is on the phone with our GP as the stress of all this is really getting to him. He’s such a trooper, and as such, doesn’t want to stop until the mission is complete.I’m glad he’s reaching out in that way. I’ve been worried about him. Oh! Just got off the phone with the GP and we’ve got a plan — Cool!Please don’t take this as I’m handling this better than he is. My mode of operation is also that of a trooper and I’m certainly having my moments — many of them. I also know that my moments may be coming after I get her home. I will not want to leave her or let her out of my sight. This could be complicated — she’ll want to be with her friends, do her thing. A new balance. And she’s so independent. HB will feel that too, and probably doubly so as he starts to get back to work. I’ve long wondered how he could do this — coming and going — and now with this. I can’t imagine.An update on sister — Her EKG was normal. That’s good news but not full proof. Once we get the DNA testing back for Natalie and pinpoint exactly what kind of LQTS Nat has, we can test Kaytee. Meanwhile, we’re to check our environment and decrease any really loud sudden noises — alarms, phones, etc — that could startle sister as apparently that could set off an incident.Dr. Canter, the electrophysiologist at Duke who works with Dr. Carboni and Dr. Armstrong, spent an incredible amount of time with sister at a follow up visit yesterday. I wasn’t there but my parents were and they were so impressed with his ability to connect with sister and go through the science of all this with her in a way she could understand. Sister wants to be a vet and loves science so I know this was totally fascinating to her, not to mention comforting to get so much information.She’s been fantastic through all this. Doing what she can to help and being so flexible. But also being real clear when she needs and wants us to be with her. She really wants to see Nat and we’re working our way to that, hopefully, before Nat comes home. WHat with H1N1 and all, the hospital has new rules about folks 18 and under visiting.We’ve heard that they’re shooting for Wednesday to put in the ICD and if all goes well there, Nat may be able to come home next Thursday. So…we’re working on getting her stronger, walking more, sitting up more and moving from clear liquids to a more solid diet all the while keeping the nausea at bay. That delicate balance HB referred to.I just heard a car pull up and that’s a friend with sister — she spent the night with a close friend and is home again. I’m gonna go and spend some time with our Peanut.I’m going to leave you with the dinner prayer we say when we’re all together, complete with our additions and movements.Thank the Lord for happy hearts, for rain and sunny weather.Thank the Lord for this food and for our time together.J’ai faim (Fr for I’m hungry)Opa (Greek exclamation)A la familia (It for to the family)(High five, fist pump)That’s us, the wacky -------s!Mom
http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Thank you for keeping the reports flowing here. Natalie's mom has touched my heart again, confering her blessings on us all as she reveals more of her devotion to her husband and children.
Dad's Sunday Report on Monday:<<<<<<
A sunday word from Dad.by admin on October 11, 2009Natalie walked with a walker today with minimal support. I was oversimplifying things when I thought all she needed was nourishment and time to overcome her “noodle legs” as I call it. A therapist at Duke explained that after an event such as hers, the brain and body have to reconnect. The simplest of tasks take time to “remember.” One of the scariest is swallowing. I could not understand their acute interest in this until explained. If swallowing is a reflex that has been un-learned, its implications are grave as food or fluids can be pulled into the lungs, as you can imagine, that is not good.Natalie seems OK in that department. Whew! Her re-learning zones seem to be in motor ability of her lower extremities, of course, these are minor tweeks compared to where she has been. Just got word from Mom that she did a lap of the her ward this morning! (sunday). Last night was not even 1/2 lap and today a full……… baby steps and more baby steps. Did I say she was incredible? Time and baby steps will get us there.The other concern is the implant of the ICD (Internal cardiac defibrilator). Whether Natalie’s event was caused by or left her with the long qt syndrome is of no consequence. From now on, she needs this device to avoid another event. Ballpark guess is she and the cardiologists will be ready by wed or thur. ……time flies and stands still. No wonder we are left with “noodle hands.”I looked out the window and it is fall, when did that happen? Much has been on hold while we have been dealing, many of those things have been dealt with by friends. Dear friends. What a precious commodity that is often overlooked and unappreciated. Never again.I would try to name them all, but that would take forever. From meals, gift bags, simple tasks, teenage care (Sis) and more. Texts to remind of support and well wishes, calls and emails, and of course, this site. These are easily identifiable. Less so, but even stronger are the forms of support that are sent otherwise. Prayers, spirits summoned and angels called to Natalie’s aid have arrived from all over. She would not be here today save these efforts from above.From a quantum amount of fear to a quantum amount of elation………. is that a quantum leap?This is a new universe. Our old universe was in jeopardy of collapsing when we had to deal with the reality of losing a daughter. Denying it all we could, it was a definite possibility. What a tailspin that can throw you into! Anytime I saw or heard something regarding Natalie’s past or even worse, her future, I became a blubbering, sobbing puddle. How could we lose a vibrant, energetic, “take the world by storm” 17 year old young woman? From texting a friend (a no no in school) to fighting for her life within a matter of minutes. quantum leaps indeed.Amazing how we can go through so much of life where the meter rises and falls very little, then within the framework of a week, that sucker has been pegged on both extremes. Now it is trying to hover in the middle again, but it will never be the same. We have seen the edges and that has changed us forever.Life is a gift. Do not just appreciate it, cherish it. We are who we love during this sometimes brief visit. Love big. Love a lot. Love is the answer. Nothing is stronger or beats the power of love……….. laughin ain’t too bad, either.Bless all for everything done to strengthen our familylove, Dad and family>>>>>http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
<<<<Monday morning update from Momby admin on October 12, 2009Today is day #12, I think. It’s truly a blur. From time to time medical professionals still ask Natalie what the day and date are. I can’t answer those things on good days, let alone these days. All I know is that when I awake this week, I’m not waking to a nightmare; I’m waking to preparing for a new normal. I’m also waking up looking forward to eating something. The first few days, the thought of food made me sick. I knew I needed to eat, but could only manage yogurt. Nothing solid, nothing that took any effort. I’m glad to be getting my appetite back.We’ve begun talking with the folks in PT and OT about Nat’s return home. How to set up things within the house so she can get to the places she needs to go. Those are new and exciting yet scary thoughts. Scary as she begins to navigate the house and navigate her new normal. What will she feel? How long will it take to achieve a new sense of independence? Will she be depressed? And if so, how dark could it get for her? How angry will she get? How sad? And how do I support her moving through this?I’m a social worker by training and an empath by birth (hah!) so I know I will “feel her pain” and that I’ll be on a similar trajectory. Dad will and so will Sis. Again, some overwhelming times ahead. I know we will get through it but at times it won’t be easy. I do find myself wishing for a timeline on this. the luxury of certainty, huh! No such luck.Now don’t get me wrong. The road we’re on will be rocky but I am so relieved to be on this road. When I remember the messages we got the first five days into this, we were not sure there would even be a road that could include the four of us. We had to bump up against the reality that it could be the three of us. The doctors gave no false sense of hope. They weren’t being harsh, they were preparing us for the worst.Just the thought of that gouged out a hole in my being. What do you do with that information? I cried. I sobbed. I rebelled. Anyone who knows me, knows I don’t like to be told that something can’t be done. There’s always a way. It may not be the way we know or the conventional way, but there’s a way. I also know my child; I know her strength; I know her tenacity. I focused on those things.From time to time I find myself thinking: I’m just imagining this was so horrible. It wasn’t really all that bad. I guess we all question our perceptions, especially about traumatic events. And just when I find myself thinking that way again, something happens to yank me back. A doctor says she can be off her heart monitoring leads for no more than 5-6 minutes or that she must have an IV in all the time, not to make their jobs easier, but because she was “dead.” Those comments hit me. They take my breath away. And while essential to hear again, I can’t go and stay there.Along those lines, I don’t want to imagine or know what she looked like when this happened. I don’t want to know how many times her heart was beating a minute. I don’t want to remember her in ICU. I don’t want to relive any of it. That may change with time, it may not. And I’m comfortable with that.Again, I go with what I know. I know she is “so beautiful, so strong.” A mantra I comforted myself with early on in this journey. I’m sure I’ll be chanting that many many times in the days and weeks ahead but I may need to extend that to our entire family. We’re beautiful; we’re strong.I hope you all have a great day. Thank you for being beautiful and strong for us!Love,Momhttp://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Thanks again for passing Dad's and Mom's heartfelt messages. Such loving and caring parents. I feel blessed every time I read their wonderful expressions of love for their child and for us all. Great beings, both of them.
Been out in the hinterlands, here's what's happened :<<
Successful Surgery!!!!!!!by admin on October 14, 2009Hello Friends and Family –Natalie has just emerged from surgery and is headed to the recovery room. I will be able to sit with her there shortly.She was scheduled for 10am and she finally got back into the cath lab around 1:30. A tough wait…but there was a tv and we took in an episode of What Not to Wear. :)Then came the sedation that left her groggy. Once that was given they rolled her into the lab itself, where Dad and I were allowed to stay with her until she went under. That is never a good feeling — letting go of your child, watching them let go.About a half hour into the procedure, one of the nurses called out to let us know the first lead had been placed successfully. About an hour later, they called to tell us things were done. The doctor told us that she did really well and if all goes well can go home perhaps Friday.They have restarted her on Beta-blockers and we are waiting to see how she responds to those. The first foray with those weren’t so great. She had lots of nausea. As that regimen also coincided with withdrawal from her major sedation and the paralytic in the ICU, it’s hard to know exactly the source of the nausea. To lower the risk of feeling sick, they are placing her on a newer class of beta-blockers.Her rest tonight may be very fitful due to the pain from the incision and the placement itself. I hate that because we want to give her the gift of sleep. Also means Dad's sleep will be restless as well (he’s going to be staying with her tonight.) The sooner we can all get back home the better. Sleep is in short supply these days and that’s taking its toll.Another hurdle has been cleared. The next phase awaits. Another sigh of relief. Another set of unknowns. The roller coaster ride continues, but at least the drops aren’t quite so steep. I’ve never liked roller coasters. I still don’t.Sending pain reducing thoughts her way this evening and we’ll let you know when we know more.Again, thank you for your thoughts, love, prayers. They continue to sustain us.Momhttp://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
And:<<
THE DAY WE HAVE WAITED FOR…by admin on October 15, 2009I LOVE EVERYONE !I was just cut off in traffic, and instead of the usually creative profanity I launch in rebuttal, I screamed I LOVE YOU ! Because I do. I love everyone. Love has brought my daughter back from the Brink. The Brink is scary. If you get to the Brink, I wish for you to have the Love envelope you and yours that has blessed Natalie and our family. This Love has brought her to this day. This day has seemed a place far, far away.Early on I came to envision Natalie as Dorothy from The Wizard of Oz. This scared my friends, and me. (Not my wife, though, so maybe she was crazy, too!) Crazy was a word tossed about to describe this theory. Calling it crazy was being kind. I started by listening to Karen Baumer talk to Natalie as she was in a deep, deep sleep in Pediatric Intensive Care Unit ( PICU ). Karen said, ” oh Natalie, I see all the art you have created here and just wonder, What will you draw and paint for us when you get back ? “Wow. By this time my jaw had become quite familiar with the floor. Bam , again.Next a nurse in PICU wanted to wash and ” Fix ” Natalie’s hair. She braided it in pigtails just like Dorothy’s!Jaw,floor. Mom pointed out the hospital robe looked like blue gingham, just like Dorothy’s pinafore!She has had a little pair of ruby slippers in her window from Kelly and Ricky Lee Harrell.But they may have to come down. Natalie may be losing her window at Duke. Natalie might be coming Home. Hello floor, remember jaw ?15 days since her heart went so fast it stopped. 15 days since they did not want to give us false Hope. 15 days since Love immediately encompassed my daughter and refused to go away. 15 days and counting that this Love, which never dwindled, but grew and grew to pull her from the Brink.Natalie is coming Home.Forgive me if it takes a while to shed this sense of protectiveness I have worn these long two weeks. Natalie needs her space. We have Time now. That Time was in jeopardy once. Now we can let her ease back to normal. Who am I kidding ?! Normal left 16 days ago.! Natalie has been changed forever. Natalie is the same as before. The new Natalie lies some where in between. Natalie needs to learn who Natalie is.Jaw and floor are one now that we are told we can take our girl Home.Too many to Thank. Many new days ahead. Please let us contact for visits.I LOVE EVERYONE !!OUR BABY IS COMING HOME THIS AFTERNOON!!By the time you read this, she may already be here :)THE 4OUR HOUGHSPS — And isn’t in ironic…..what will keep Natalie alive is a device that looks like tin, a heart straight from the Tin Man! As for the munchkins….they’ve been everywhere.PSS — Mom has requested not to be Auntie Em, but Glinda. Natalie says Glinda’s goofy. Libbie really loves that dress, tho :)………….so I think we’ll let her be Glinda.THERE’S NO PLACE LIKE HOME .http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Things are looking good. Thanks for all the positive energy from everyone who checked in from BT, it has been a powerful thing. I'm sure this isn't over... but it's a good kind of crazy now.<<<<
A sunday visit…….by admin on October 18, 2009Sunday we had the good luck to be able to visit the family at home. I just wanted to pass on the word that Natalie seemed happy to be back at home and well along the road to post operative recovery. She had just returned from a short walk down the driveway w/ Mom and was hanging out on the couch. An old family friend came to visit and give hugs all around. Sis,Mom and Dad were all at hand taking follow up calls from doctors and helping deliver some fine homemade chicken soup w/”double dough” balls from another friend, Jason, who had just deliverd the perfect dish.In short life seemed to be finding its comfortable place and that was a fine thing indeed....>>>http://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
I'm very happy to have come to know Natalie and her family through your loving concern for them. Great loving people, you too. Thanks again for keeping the reports coming.
How are Natalie and her parents doing? It's been a while since we had any news.
Natalie's dad is an ESPN cameraman. Here's one from dad upon his returning to work:3 WEEKS TODAYby admin on October 21, 2009I CAN’T SEEM TO MAKE MY LEGS DO WHAT I TELL THEM. IT IS THE SAME PROBLEM NATALIE IS HAVING.She tells her legs to move and they go all ” noodley ” on her. My problem is different.I tell my legs to move and they refuse. They do not want to go. They do not want me to go. I have been home 3 weeks today. Today is the first time leaving since rushing home Sept. 30.Many friends helped me get home that day to a gravely ill child. Critically ill child. Natalie is no child. She is a beautiful and glorious young woman. The photos on this site are from this summer Paris trip and are evidence to her beauty. She will still, always,be my baby.OK, Sis is technically the baby of the family, but Natalie was our first born baby.3 Weeks ago I flew home to find her in a World of Hurt. A Universe of Hurt.The Universe of Hurt lives in the Hospitals. It is a surreal World of pain, but hopefully, Healing.They try to patch up hurt people, families, Lives. It is a tough job. Many times hurts can not be mended. But Sometimes… Miracles Happen .Sometimes harsh and dire predictions do Not come true. Sometimes things get better than expected. Sometimes Love and Angels and Higher Powers intervene. Sometimes patients Wow the doctors. Natalie Wowed each and every nurse, doctor, and therapist she came in contact with. That’s my Daughter.Thank Heaven these Sometimes Happen .So many People made this Sometime. Too, too many to thank. Yet we do. Again and Again.No wonder these legs don’t want to leave. Who leaves a Miracle ? I sure don’t want to . I’ve stared at my daughter so much these last 3 weeks, it’s hard to imagine a day without seeing her. Seeing her improve. Seeing her become herself again. Ohh. That’s what’s holding up these legs.3 Weeks today and this Miracle still seems Unreal. The Nightmare We Faced We turned into a Dream.Sweet Dreams.Dad and All 4our H...shttp://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Dad's a brother of a high order. That's what I'm feeling. Powerful personal experience for us all. It's great and humbling to be in tune with it through his words.
I haven't logged on in while and just came across this. My wife and I will keep Natalie in our thoughts. I was glad to read that she is much more stable.
"Regardless the severity of the storm, stay the course - inevitably you will sail into clear skies."
Author Unknown
UPDATE please!
Also I need your snail mail address again.
I have 2 T-shirts that are waiting to be delivered.
How're Natalie and her parents progressing? It's almost one month since you last posted a report from her dad.
Be IN your life………by admin on November 18, 2009Hello all –Today is Wednesday and it’s been 7 weeks to the day that this twist in our lives appeared. The color of the sky that day was a bright blue. It was cool in the morning and lovely and warm in the afternoon. The leaves were still green. In the last several weeks we’ve had plenty of blue skies and some good long rains. The leaves have changed so much though. I look outside and the ones that remain on our trees are in their final stages of color — some yellows and reds but mostly brown. Before our eyes and while we’ve been dealing with this it seems as if an entire season has gone by.That happened for me about 15 years ago. I had some health issues that kicked off in late September, when Natalie was 18 months old. I won’t bore you with the details, but suffice it to say, I had a great deal of time to watch the season pass but not be of it passing. Detached you might say and very surreal. It’s a very weird place to be and one that I don’t envy Natalie being in. It will help her so much to get back IN to life and I think she’s to the point where she needs to delve in.Last week, she went to lunch at school and had a great time seeing friends and teachers. Folks were so pleased to see her, too. I noticed on our trip to the school that come early December the staff will be getting a CPR update. I’ve also found out that our school district has allocated funds for more AEDs in the middle and high schools and for them to be placed in our elementary schools. In addition, Cedar Ridge has updated its response protocol. I hate that an incident had to occur, but am so impressed that our school district and our school has responded so thoroughly.When I wrote last week, Nat was lobbying heavily for a full social calendar for the upcoming weekend. Well, she did have a big one — by our recent standards — and did well. This week, we’re meeting with teachers to plan for her return to school next week. Nat’s nervous but I think oh so ready. She’s thoroughly bored at home now and needs the diversion. She needs to be back IN her life.This weekend we plan to go see my grandmother over in Raleigh (40 minutes away). She’s in her early 90s and needs to see Natalie. Natalie needs to see her too. My grandmother’s a hoot and Natalie really enjoys her. Other than that, we’ll see. I’m sure social stuff will be in the mix, as it should be.Enjoy being IN your lives. It’s really the only way to go!Oh behalf of all the Family,Much love,Momhttp://www.tvwsolar.com
We'll have a kid
Or maybe we'll rent one
He's got to be straight
We don't want a bent one
He'll drink his baby brew
From a big brass cup
Someday he may be president
If things loosen up
Awesome.
Thanks for the update.
Another amazing and inspiring report. Thanks for posting it here.
If feels very good, knowing that Natalie has recovered and is ready to get back into her life, full time. How could it be otherwise, with parents who love her so much.
Please keep us in the loop for a while longer, until Christmas anyway. Such heartfelt writing deserves to be read and felt by others who can benefit from it. I'm certainly one of those.
Peter